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Our Nonprofit Partners

At Lotsa Helping Hands, we are committed to supporting the nonprofit sector, and align with national organizations who offer a branded or co-branded version of our service to their members and constituents.

Here is a partial list of the organizations that are using a Lotsa Helping Hands to make life easier for the people they serve:



AARP Tennessee

AARP Tennessee

AARP is a nonprofit, nonpartisan membership organization that helps people 50+ have independence, choice and control in ways that are beneficial and affordable to them and society as a whole. We produce AARP The Magazine, published bimonthly; AARP Bulletin, our monthly newspaper; AARP Segunda Juventud, our bimonthly magazine in Spanish and English; NRTA Live & Learn, our quarterly newsletter for 50+ educators; and our website, www.aarp.org. AARP Foundation is an affiliated charity that provides security, protection and empowerment to older persons in need with support from thousands of volunteers, donors, and sponsors. We have staffed offices in all 50 states, the District of Columbia, Puerto Rico and the U.S. Virgin Islands. In Tennessee, we have more than 650,000 members, almost 1,000 volunteers, and dozens of volunteer leaders doing good in communities statewide.

To connect with us in Tennessee, follow us on Facebook at www.facebook.com/AARPTennessee and Twitter at www.twitter.com/aarp.

email

tn@aarp.org

phone

866.295.7274



Alzheimer's Association

Alzheimer's Association

The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer care, support and research.

Our mission is to eliminate Alzheimer's disease by advancing of research; enhancing care and support for all affected; and reducing the risk of dementia through promoting brain health. Our vision is a world without Alzheimer's.

For more information about resources in your community or personal support from professionals who understand the disease and its impact, call us toll-free, day or night, 365 days a year.

home page

www.alz.org

email

info@alz.org

phone

800-272-3900



My Cancer Circle

My Cancer Circle

Boehringer Ingelheim Pharmaceuticals, Inc. and CancerCare® have collaborated to provide My Cancer Circle, a free, private community to help support cancer caregivers. This service demonstrates our commitment to help people facing cancer and those who care for them every day.

About Boehringer Ingelheim

The Boehringer Ingelheim group is one of the world’s 20 leading pharmaceutical companies. Headquartered in Ingelheim, Germany, it operates globally with 145 affiliates and more than 42,000 employees. Since it was founded in 1885, the family-owned company has been committed to researching, developing, manufacturing and marketing novel products of high therapeutic value for human and veterinary medicine.

About Boehringer Ingelheim in Oncology
Building on scientific expertise and excellence in the fields of pulmonary and cardiovascular medicine, metabolic disease, neurology, virology and immunology, Boehringer Ingelheim has embarked on a major research program to develop innovative cancer drugs. Working in close collaboration with the international scientific community and a number of the world’s leading cancer centers, Boehringer Ingelheim is committed to discovering and developing novel cancer treatments. This commitment is underpinned by using advances in science to develop a range of targeted therapies in areas of medical need. Boehringer Ingelheim’s oncology pipeline continues to evolve and demonstrates the company’s continued commitment to the disease area.

For more information, please visit http://us.boehringer-ingelheim.com and follow us on Twitter at http://twitter.com/boehringerus.

About CancerCare

CancerCare is a national nonprofit organization that provides free, professional support services to individuals, families, caregivers and the bereaved to help them better cope with and manage the emotional and practical challenges arising from cancer. Our services include counseling and support groups, educational publications and workshops and financial assistance. All of our services are provided by professional oncology social workers and are offered completely free of charge. We help more than 100,000 individuals and families in all 50 states each year, and receive more than one million visits to our websites. To speak with a CancerCare social worker, call 1-800-813-HOPE (4673). Or, visit www.cancercare.org. CancerCare is not an affiliate of Boehringer Ingelheim Pharmaceuticals, Inc.



Kidney Cancer Association

Kidney Cancer Association

The Kidney Cancer Association (KCA) is a charitable organization made up of patients, family members, physicians, researchers, and other health professionals globally. It is the world's first international charity dedicated specifically to the eradication of death and suffering from renal cancers. It is also by far the largest organization of its kind, with members in more than 100 countries. We fund, promote, and collaborate with the National Cancer Institute (NCI), American Society for Clinical Oncology (ASCO), American Urological Association (AUA), and other institutions on research projects. We educate families and physicians, and serve as an advocate on behalf of patients at the state and federal levels in the United States and Globally.

home page

www.KidneyCancer.org

email

office@kidneycancer.org

phone

(800) 850-9132



American Lung Association

American Lung Association

Now in its second century, the American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease. With your generous support, the American Lung Association is “Fighting for Air” through research, education and advocacy. Contact the American Lung Association for more information or to support the work it does.

home page

www.lung.org

email

info@lung.org

phone

800-LUNG-USA, 800-586-4872



Muscular Dystrophy Association

Muscular Dystrophy Association

myMuscleTeam is a care-coordinating service offered by MDA that enables those coping with neuromuscular disease to quickly and easily organize a personal assistance network of family and friends.

The site allows you to set up your own private and secure Web page from which you can:

  • easily update family and friends about important developments;
  • request and organize assistance for tasks such as yard work, meal preparation or transportation to medical appointments; and
  • schedule trusted family members and friends to provide a few hours respite for primary caregivers.

MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. The majority of contributions to MDA come from individual donors.

To learn more about MDA and the more than 40 diseases it covers, please visit www.mda.org. General correspondence may be addressed to mda@mdausa.org. To learn about MDA services and volunteer opportunities in your area, call (800) 572-1717.

home page

www.mda.org

email

mda@mdausa.org

phone

800-572-1717



The Leukemia & Lymphoma Society (LLS)

The Leukemia & Lymphoma Society (LLS)

The Leukemia & Lymphoma Society (LLS) exists to find cures and ensure access to treatments for blood cancer patients. LLS funds research to advance more breakthrough therapies for blood cancer patients. We are saving lives not someday, but today.

Visit us online at our national web site, www.lls.org. To speak to an Information Resource Specialist, please call (800) 955-4572.

home page

www.lls.org

email

info@lls.org

phone

1-800-955-4572



American Parkinson Disease Association

American Parkinson Disease Association

APDA meets its unique dual mission to “Ease the Burden – Find the Cure” through a national network of 42 chapters, 50 Information & Referral (I&R) centers and approximately 1,000 support groups. It is the only Parkinson’s disease (PD) organization that equally funds scientific research to find the cause(s) and cure, while providing patient and caregiver support and education.

APDA has been a funding partner in most of the PD scientific discoveries. Its Scientific Advisory Board, a panel of prominent clinicians and scientists, reviews all applications and recommends funding the most promising research.

APDA is the nation’s largest grassroots Parkinson’s organization. Volunteer chapters raise awareness and funds for research. I&R centers provide patient/caregiver services and physician referrals, educational materials and programs. Support groups address the needs of patients, families, the newly diagnosed, young onset, and caregivers. The APDA National Young Onset Center is the country’s only full-time center addressing the specific challenges of young people with PD.

APDA National Headquarters is located at Parkinson Plaza, 135 Parkinson Avenue, Staten Island, N.Y. 10305.

home page

www.apdaparkinson.org

email

apda@apdaparkinson.org

phone

800-223-2732

fax

718-981-4299



Caregiver Action Network

Caregiver Action Network

The Caregiver Action Network is the nation’s leading family caregiver organization working to improve the quality of life for the 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (formerly the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge.

home page

www.caregiveraction.org

email

info@caregiveraction.org

phone

202-772-5050



National Health Council

National Health Council

The National Health Council is the only organization of its kind that brings together all segments of the health care community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers. Made up of more than 100 national health-related organizations, its core membership includes 50 of the nation’s leading patient advocacy groups. Other members include professional and membership associations, nonprofit organizations with an interest in health, and major pharmaceutical, medical device, and biotechnology companies. The National Health Council brings together diverse stakeholders within the health community to work for health care that meets the personal needs and goals of people with chronic diseases and disabilities.

home page

www.nationalhealthcouncil.org

email

info@nhcouncil.org

phone

202-785-3910

fax

202-785-5923



The ALS Association

The ALS Association

The ALS Association is the only national not-for-profit health organization dedicated solely to the fight against ALS. ALSA covers all the bases - research, patient and community services, public education, and advocacy - in providing help and hope to those facing the disease. The mission of The ALS Association (ALSA) is to find a cure for and improve living with amyotrophic lateral sclerosis.

home page

www.alsa.org

email

alsinfo@alsa-national.org

phone

800-782-4747

fax

818-880-9006



ALS Society of BC

ALS Society of BC

The ALS Society of BC is dedicated to providing direct support to ALS patients, along with their families and caregivers, to ensure the best quality of life possible while living with ALS. Through assisting research, we are committed to find the cause of, and cure for Amyotrophic Lateral Sclerosis (ALS).

The ALS Society of BC has three principal objectives:

  1. To provide direct support to patients, their families, and caregivers. This includes an equipment loan program.
  2. To raise funds for patient services and research, and
  3. To increase public awareness and understanding of ALS.

home page

www.alsbc.ca

email

info@alsbc.ca

phone

800-708-3228
604-685-0737

fax

604-685-0725



Aplastic Anemia & MDS International Foundation, Inc.

Aplastic Anemia & MDS International Foundation, Inc.

The Aplastic Anemia & MDS International Foundation is the oldest and largest patient advocate and support organization for bone marrow diseases, providing life-saving hope, knowledge, and support to hundreds of thousands of patients and their families around the world. Our services are free. Contact us at AA&MDSIF, P.O. Box 613, Annapolis Maryland 21404-0163

home page

www.aamds.org

email

help@aamds.org

phone

800-747-2820

fax

410-867-0240



ARCH National Respite Network

ARCH National Respite Network

The ARCH program was begun in the early 1990s with funding from the Children's Bureau in the US Department of Health and Human Services to support a national network of federally funded respite and crisis care programs for children with disabilities, chronic illness and at risk of abuse and neglect. During its tenure as a national resource center, ARCH staff developed an array of resources for families and respite providers, including the national respite locator service, guides for starting respite programs in communities, and fact sheets on a variety of topics related to respite and crisis care not only for children and their families but also for families who are caring for the elderly.

When federal funding was no longer available, ARCH continued to make these resources available with the support of several hundred members of the ARCH National Respite Network who contribute to the organization each year.

home page

www.archrespite.org

email

mmathers@chtop.org

phone

919-490-5577

fax

919-490-4905



Beth Israel Deaconess Medical Center

Beth Israel Deaconess Medical Center

Beth Israel Deaconess Medical Center is one the top hospitals in the country passionately finding new cures, offering the best medical care, and teaching and inspiring caregivers of tomorrow. At BIDMC, we believe in medicine that puts people first. That is why we treat our patients with the utmost respect and compassion, like we would our own family members and friends. This is the heart of caring at BIDMC.

home page

bidmc.org

phone

617-667-7000



BMT Infonet

BMT Infonet

Blood & Marrow Transplant Information Network is dedicated to providing transplant patients and their loved ones with emotional support and high quality, easy-to-understand information about bone marrow, peripheral blood stem cell, and cord blood transplants. Since 1990, our networks of medical experts and transplant survivors have helped more than 100,000 transplant patients cope with the prospect of a blood stem cell transplant. Our goal is to empower patients with credible information and emotional support, so that they can take a more active role in decisions affecting their health and treatment options.

home page

www.BMTInfoNet.org

email

help@BMTInfoNet.org

phone

888-597-7674

fax

847-433-4599



Brain Tumor Society

Brain Tumor Society

The Brain Tumor Society's vision is a world without brain tumors. We support brain tumor patients, survivors and their caregivers by providing access to supportive services and informational resources. Our social worker responds to individual inquiries and coordinates one-on-one peer networking through our Connection Of Personal Experiences (COPE) Program. We provide free informational materials to all those affected by a brain tumor diagnosis. We fund carefully-selected scientific research to enhance treatments and, ultimately, to find a cure. Our mantra is: There is Hope. There will be a Cure.

home page

www.braintumor.org

email

info@braintumor.org

phone

800-770-TBTS (8287)

fax

617-924-9998



BrightFocus Foundation

BrightFocus Foundation

BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer’s disease, macular degeneration, and glaucoma. We are working to save mind and sight.

home page

www.brightfocus.org

email

info@brightfocus.org

phone

800-437-2423

fax

301-258-9454



Caring Connections

Caring Connections

Caring Connections, a program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer engagement initiative to improve care at the end of life supported by a grant from The Robert Wood Johnson Foundation. Since 2004, Caring Connections has provided free resources and information to help people make decisions about end-of-life care and services before a crisis and connect them with the resources they need, when they need them.

home page

www.caringinfo.org

email

caringinfo@nhpco.org

phone

800-658-8898 (Toll-free Hospice Helpline)
877-658-8896 (Linea Cuidando con Cariño)



Colon Cancer Alliance

Colon Cancer Alliance

The Colon Cancer Alliance (CCA), founded in 1999, is a national patient advocacy organization dedicated to ending the suffering caused by colorectal cancer (CRC). CCA is the official patient support partner of Katie Couric's National Colorectal Cancer Research Alliance. Made up of colon and rectal cancer survivors, caregivers and people with a genetic predisposition to CRC, CCA is committed to ending the suffering caused by colorectal cancer through patient support, education, research and advocacy. The organization provides educational information free of charge to the public in an ongoing effort to educate men and women of all ages of the importance of early detection and screening. The Colon Cancer Alliance is working to focus more private and public research funding on colorectal cancer and to pass legislation ensuring access to screening. CCA is also working to ensure that more clinical trials are available for those who want them.

home page

www.ccalliance.org

email

info@ccalliance.org

phone

877-422-2030

fax

425-940-6147



Connecting With Seniors

Connecting With Seniors

Connecting with Seniors Inc. offers support to those Caregivers who feel alone or overwhelmed, helping them find resources to better cope with the day-to-day care of loved ones. Our goal is to partner with local businesses that provide services to Caregivers and continually assess the needs of Caregivers in order to connect them to the best resources available in the area. Caregiver support programs and informational seminars provide Caregivers easy access to the many local services and events.

home page

www.connectingwithseniors.org

email

sensocc@hotmail.com

phone

732-714-9704



Crohn's & Colitis Foundation of America

Crohn's & Colitis Foundation of America

The Crohn's & Colitis Foundation of America (CCFA) is the largest voluntary non-profit health organization dedicated to finding cures for Inflammatory Bowel Diseases (IBD). CCFA's mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who suffer from these diseases. The Foundation works to fulfill its mission by funding research, providing educational resources for patients and their families, medical professionals, and the public, and furnishing supportive services for those afflicted with IBD.

For more information, visit www.ccfa.org, call 888-694-8872, or connect on social media: Facebook, Twitter, Google+, Pinterest, YouTube.

home page

www.ccfa.org

email

info@ccfa.org

phone

888-694-8872



Empowering Caregivers

Empowering Caregivers

Empowering Caregivers was created to provide a safe, nurturing place for all family caregivers as well as professionals. Expert columns feature well-known individuals in the fields of caregiving, self-help and empowerment. Resources include a monthly newsletter; journal exercises for the Empowering Caregivers Community, providing scheduled chats and forums/message boards; and a caregiver's spotlight, honoring a caregiver each month. The site is an opportunity for all caregivers to move into forgiveness, to heal and open to the most important healing power there is: "LOVE".

home page

www.care-givers.com

email

info@care-givers.com



Family Caregiver Alliance

Family Caregiver Alliance

Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. FCA now offers programs at national, state and local levels to support and sustain caregivers. FCA is a public voice for caregivers, illuminating the daily challenges they face, offering them the assistance they so desperately need and deserve, and championing their cause through education, services, research and advocacy.

home page

www.caregiver.org

email

info@caregiver.org

phone

800-445-8106
415-434-3388

fax

415-434-3508



Geriatric Oncology Consortium

Geriatric Oncology Consortium

The GOC is a national non-profit organization tasked with the mission to be the premier provider and resource for geriatric oncology research and education, and to fill the urgent need to address cancer treatment in the elderly through a national, community-based program. The GOC also conducts patient and caregiver educational programs to educate and enhance clinical trial participation among older adults with cancer. The GOC also develops and conducts clinical trials designed to optimize cancer therapies for the older adult population. For more information please visit www.thegoc.org.

home page

www.thegoc.org

email

info@thegoc.org

phone

888-GERI-ONC
888-437-4662

fax

410-467-4100



Heroes for Children

Heroes for Children

Heroes for Children is a nonprofit organization providing financial and social assistance to families, within the state of Texas, of children (ages 0-22 years) battling cancer. To date, no request has been denied. Heroes for Children helps families pay for rent, utilities, medical bills, and more. Often, a parent has to leave work to care for their child, which creates financial stress. Our goal is to ease this stress and enable the family to focus on the most important part of treatment - the child. Heroes for Children was founded in memory of Taylor Anne Brewton and Allison Leigh Scott, both of whom were diagnosed with Acute Myeloid Leukemia. Taylor lost her courageous battle at the age of four, while Allie's battle ended before her first birthday. Taylor and Allie's tremendous courage and amazing spirit touched the lives of many in this community and across the country. Taylor and Allie's spirits live on through our organization. For more information either click on the link below, write to Heroes for Children, 1701 North Collins, Suite 240, Richardson, TX 75080, or call us at the numbers listed below.

home page

www.heroesforchildren.org

phone

214-256-5824

fax

972-437-1443



Living Beyond Breast Cancer

Living Beyond Breast Cancer

Living Beyond Breast Cancer, founded in 1991, is a national nonprofit education and support organization dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life.

LBBC's programs and services assist women at all stages of diagnosis or treatment. Programs and services include: large-scale interactive conferences; teleconferences; the Survivors' Helpline (888.753.5222), a toll-free information and support line; lbbc.org, an informational website; free quarterly newsletters; publications for medically underserved women; low-cost informational recordings; networking programs; workshops and trainings for healthcare providers; and the Paula A. Seidman Library and Resource Center.

home page

www.lbbc.org

email

mail@lbbc.org

phone

610-645-4567
888-753-LBBC (5222)

fax

610-645-4573



The Lung Association, Alberta & NWT

The Lung Association, Alberta & NWT

The Lung Association, Alberta & NWT (TLA) was first established as the Alberta Tuberculosis Association in 1939. During the tuberculosis (TB) epidemic, it educated the public about TB, conducted mass chest x-rays and provided rehabilitation services for TB sanatorium patients. Recognized as one of Alberta's oldest health charities, The Lung Association has expanded its initiatives over the years to include education, research and lung health awareness. Today, The Lung Association focuses its efforts and resources on all aspects of lung health including asthma, COPD, flu and infectious diseases, sleep apnea, environmental issues, tobacco control and continued work in TB. They work tirelessly to raise and allocate funds for critical research, advocate in public policy, provide patient support, and be the primary information source for the lung health of all.

home page

www.ab.lung.ca

email

info@ab.lung.ca

phone

780-488-6995 ext 2253



National Alliance for Caregiving

National Alliance for Caregiving

Since 1996, the National Alliance for Caregiving has provided a forum for opinion leaders to work together, on behalf of family caregivers, to find solutions to the complex challenges they face in caring for a loved one who needs hands-on assistance. Through its pioneering research and collaborative programs, innovative approach to problem solving, and expertise in the core issues, the Alliance has earned the trust of professionals, policy makers, the media, and consumers in the United States and around the world.

home page

www.caregiving.org

email

info@caregiving.org

fax

301-652-7711



National Coalition for Cancer Survivorship

National Coalition for Cancer Survivorship

NCCS is the oldest survivor-led cancer advocacy organization in the country and a highly respected authentic voice at the federal level, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care. In 2004, NCCS launched Cancer Advocacy Now!(tm), a legislative advocacy network that seeks to involve constituents from across the country in federal cancer-related issues. Patient education is also a priority for NCCS. We believe that access to credible and accurate patient information, such as NCCS's award-winning Cancer Survival Toolbox(r), is key to demanding and receiving quality cancer care.

home page

www.canceradvocacy.org

email

info@canceradvocacy.org

phone

301-650-9127
877-NCCS-Yes



National Kidney Foundation

National Kidney Foundation

The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.

home page

www.kidney.org

email

info@kidney.org

phone

800-622-9010
212-889-2210

fax

212-689-9261



National Marrow Donor Program

National Marrow Donor Program

National Marrow Donor Program (NMDP) connects people who need a life-saving bone marrow or cord blood transplant with the doctors, donors and information they need to help them live longer and healthier lives by:

* identifying volunteer donors and cord blood units for patients,
* providing resources and education to patients and their doctors, and
* improving patient transplant outcomes through innovative science.

National Marrow Donor Program Office of Patient Advocacy (OPA) assists patients, families and health professionals by providing free one-on-one support, financial resources and transplant education. Patient information for adults and children is available in several languages and formats.

home page

www.marrow.org

email

patientinfo@nmdp.org

phone

888-999-6743 (in the United States)
612-627-8140 (outside of the United States)



National MS Society

National MS Society

The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS. Founded in 1946, the National Multiple Sclerosis Society offers more services for people with MS, supports more MS research, provides more professional education programs, and furthers more MS advocacy efforts than any other MS organization in the world. For more information or to contact your local chapter call 1-800-FIGHT MS (800-344-4867) or visit www.nationalmssociety.org.

home page

www.nationalmssociety.org

email

generalmailbox@nmss.org

phone

800-FIGHT-MS
800-344-4867

fax

303-813-1513 (Client Programs Department)



National Ovarian Cancer Coalition

National Ovarian Cancer Coalition

Every day, women, families and friends concerned about a diagnosis of ovarian cancer turn to the National Ovarian Cancer Coalition for reliable information. Through the services of NOCC, they learn of the importance of early detection, of the various treatment options, about the most current research findings, clinical trials and where to go for help. Program activities are carried out in local communities nationwide by a growing grassroots network of committed volunteers organized into licensed Divisions across the US. With millions of contacts from consumers annually, the Coalition strives nationally to advance a mission of education, awareness, advocacy and support.

home page

www.ovarian.org

email

nocc@ovarian.org

phone

888-OVARIAN

fax

214-273-4201



National Stroke Association

National Stroke Association

National Stroke Association is the only national organization in the United States that focuses 100 percent of its efforts on stroke by developing compelling education and programs focused on prevention, treatment, rehabilitation and support for all impacted by stroke. Founded in 1984, the organization works every day to meet its mission to reduce the incidence and impact of stroke.

home page

www.stroke.org

email

Info@stroke.org

phone

800-STROKES, 800-787-6537

fax

303-649-1328



People Beating Cancer

People Beating Cancer

The peoplebeatingcancer.org website is an "interactive health communication application." The Cochrane Collaboration defines an IHCA as "computer-based, usually web-based, information package for patients that combine health information with at least one of social support, decision support, or behaviour change support."

When I was first diagnosed with multiple myeloma in February of 1994, I went to the hospital, listened carefully to an oncologist and did everything that told me to do. My induction therapy led to a partial remission and then my autologus bone-marrow transplant, several months later, resulted in a partial remission.

My cancer returned twice more over the next 21 months at which time my oncologist told me that nothing more could be done for me. I turned to the Internet and began to learn about the therapies and lifestyle changes that let to my complete remission. I have been completely cancer free since April of 1999.

Through the Internet and what I learned from it, proved to be so valuable to me, I decided to start a 501c3, The Galen Foundation, and launch an IHCA, first Beating-Myeloma.org and now PeopleBeatingCancer.org.

The mission of PeopleBeatingCancer.org is to help cancer survivors and caregivers manage their health and live better, longer lives.

The Cochrane Collaboration's discussion of interactive health communication sums up the goal of PeopleBeatingCancer.org-

"People with chronic disease have multiple needs, including information about their illness and the various treatment options; social support; support with making decisions; and help with achieving behaviour change, for example, changes in diet or exercise. Computer-based programmes which combine health information with online peer support, decision support, or help with behaviour change may be one way of meeting these needs, and of helping people to achieve better health."

http://www2.cochrane.org/reviews/en/ab004274.html

home page

peoplebeatingcancer.org



Project Compassion

Project Compassion

Project Compassion creates community and provides support for people living with serious illness, caregiving, end of life and grief in the Durham-Chapel Hill area of North Carolina. Through Support Teams, Project Compassion's volunteers provide practical, emotional, and spiritual support for people who need help with caregiving so individuals and families will not have to cope alone. Project Compassion offers team members, leaders, and coaches the orientation, continuing education, coaching, leadership training and support they need to sustain this effort over the long haul. Since 2002, 100 Support Teams with 825 volunteers have provided over 20,000 hours of volunteer support for 300 individuals. Since 2003, Project Compassion has assisted organizations across the country with creating caregiving Support Team initiatives.

home page

www.project-compassion.org

email

jane@project-compassion.org

phone

919-402-1844

fax

919-402-1843



Rosalynn Carter Institute for Caregiving

Rosalynn Carter Institute for Caregiving

The Rosalynn Carter Institute for Caregiving (RCI) was established in 1987 on the campus of Georgia Southwestern State University in Americus, Georgia in honor of former First Lady Rosalynn Carter. RCI works to establish local, state and national partnerships committed to building more effective long-term care systems and providing greater recognition and support for America's unsung heroes - the millions of caregivers, both family and professional, who provide us all with models of selfless service and hope for the future.

home page

www.rosalynncarter.org

email

rci@gsw.edu

phone

229-928-1234

fax

229-931-2663



Stephanie Robinson Foundation

Stephanie Robinson Foundation

The Stephanie Robinson Foundation is committed to helping make a difference in the lives of leukemia/lymphoma patients and their caregivers. We make that difference by focusing our efforts in five key areas. These areas include:

Planning - getting organized / minimizing distraction, keeping the focus on matters of the heart, mind and soul;
Emotional Support - creating a support team and a way of communicating with friends and family;
Inspiration - stories, songs, books to encourage / inspire / maintain a strong mental state;
Resources - helpful website links for educating patients / caregivers to other resources that may be helpful;
Financial Support - monetary grants to help with necessary living expenses.

home page

www.stephanierobinson.org



Thyroid Cancer Survivors' Association

Thyroid Cancer Survivors' Association

ThyCa:Thyroid Cancer Survivors' Association is a national nonprofit organization of thyroid cancer survivors, caregivers and health care professionals, advised by thyroid cancer specialists. ThyCa educates and supports patients and families through our award winning web site, support groups, person-to-person support, newsletters, downloadable low-iodine cookbook, other materials in English and Spanish, workshops, and the Annual International Thyroid Cancer Survivors' Conference. ThyCa also sponsors year-round awareness programs for early detection, Thyroid Cancer Awareness Month, and thyroid cancer research funds and research grants.

home page

www.thyca.org

email

thyca@thyca.org

phone

877-588-7904

fax

630-604-6078



Well Spouse Association

Well Spouse Association

The Well Spouse Association is a national, not-for-profit 501(c)(3) organization that offers support to spouses or partners of people with chronic illness and/or disability. The WSA has support groups in local areas, and also offers a quarterly newsletter, Mainstay, as well as mentoring, respite weekends and an annual national conference. All these are available for WSA members who pay their annual dues. In addition we host the Online WSA Forum on our website, which does not cost anything to join, whether or not you are a member.

home page

wellspouse.org

email

support@wellspouse.org

phone

800-838-0879
732-577-8899

fax

732-577-8644



Young Survival Coalition

Young Survival Coalition

The Young Survival Coalition (YSC) is the only international, non-profit network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer. Through action, advocacy and awareness, the YSC seeks to educate the medical, research, breast cancer and legislative communities and to persuade them to address breast cancer in women 40 and under. The YSC also serves as a point of contact for young women living with breast cancer.

Unlike their post-menopausal counterparts, young women diagnosed with breast cancer face higher mortality rates, fertility issues and the possibility and ramifications of early menopause. The YSC seeks to change the face of breast cancer by: advocating to increase the number of studies about young women and breast cancer; educating young women about the importance of breast self-examination and early detection; and being a point of contact for other young women with breast cancer.

The YSC seeks to improve the quality and quantity of life of all young women affected by breast cancer.

home page

www.youngsurvival.org

email

info@youngsurvival.org

phone

646-257-3000
877-YSC-1011

fax

646-257-3030

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