View or Join our Resource Directory
At Lotsa, we understand the needs of caregivers. We know they need resources and help. Whether you are part of a Lotsa Community or not, we’ve compiled a list of organizations and resources that serve caregivers. And we hope you find them helpful along your caregiving journey.
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Our Resource Directory offers a list of organizations that serve caregivers. Check them out!
Lotsa Helping Hands Resource Directory
| Alzheimer's | |
| Alzheimer's Association | The Alzheimer's Association is the leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease by advancing of research; enhancing care and support for all affected; and reducing the risk of dementia through promoting brain health education. Our vision is a world without Alzheimer's. info@alz.org 800-272-3900 |
| Bone Marrow Transplantation | |
| Blood & Marrow Transplant Information Network (BMT InfoNet) | Providing resource information and emotional support to patients and their loved ones before, during and after a bone marrow, stem cell or cord blood transplant. |
| National Bone Marrow Transplant Link | A nonprofit organization whose mission is to help patients, caregivers, and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship by providing vital information and personalized support services. Visit the web site for information about programs and resources (publications, including the Caregivers’ Guide for Bone Marrow/Stem Cell Transplant, can also be downloaded for free). Cindy S. Goldman, MEd, LPC, NCC cindygoldman@nbmtlink.org 248-358-1886 |
| Brain Injury and Tumor | |
| BrainLine.org | A multimedia project offering information and resources about preventing, treating, and living with TBI. BrainLine serves anyone whose life has been affected by TBI. That includes people with brain injury, their families, professionals in the field, and anyone else in a position to help prevent or ameliorate the toll of TBI. info@brainline.org |
| Children’s Brain Tumor Foundation | Founded in 1988 by dedicated parents, physicians and friends. Children’s Brain Tumor Foundation’s mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors. info@cbtf.org 866-228-4673 |
| Cancer | |
| Cancer Support Community | The Cancer Support Community provides emotional support, education and hope to anyone affected by cancer. Services are available through a network of community-based centers, hospitals, and community oncology practices and online. help@cancersupportcommunity.org 888-793-9355 |
| Colon Cancer Alliance (CCA) | The CCA website offers answers to the complex questions frequently asked by those affected by colon cancer including information about screening, treatment, survivor stories, and quality of life and financial issues. info@ccalliance.org 877-422-2030 |
| Living Beyond Breast Cancer | A comprehensive and easy to navigate website providing information and resources to women affected by breast cancer, their family members, caregivers, friends and healthcare providers. Kevin Gianotto kevin@lbbc.org |
| Dana Farber Cancer Institute | Dana-Farber's website provides information about specialized treatment and compassionate care for adults and children with cancer, as well as the latest in cancer research breakthroughs. Carolyn Grantham carolyn_grantham@dfci.harvard.edu |
| Testicular Cancer Society | The Testicular Cancer Society is a 501(c)(3) non-profit organization to raise awareness for the most common form of cancer in men age 15-35. We are dedicated to increasing awareness and education about the disease and providing support for fighters, survivors and caregivers. |
| 4th Angel Mentoring Program | A national, free, non-profit organization that matches patients and caregivers with trained cancer survivor/caregiver volunteers for a phone or email relationship. We strive to match based on a similar diagnosis, age range, gender, common struggles and similar interests. Jamie Kabat BSN, MSN 4thangel@ccf.org 866-520-3197 |
| Cancer.net | The American Society of Clinical Oncology’s patient information web site, Cancer.Net, provides timely, oncologist-approved information to help patients and families make informed health care decisions. Patient Resource Helpline (does not give medical advice) 888-651-3038 contactus@cancer.net |
| CURE Today | Curetoday.com is CURE magazine’s online destination for cancer patients, survivors and caregivers. CURE is a free publication that combines science with humanity making cancer understandable. editor@curetoday.com |
| CureSearch for Children’s Cancer | An online resource for patients, families, and their support systems. The website provides up-to-date information about the various types of children’s cancer; research trials; descriptions of tests, procedures, and treatments; and information to help families manage the emotional aspects of caring for a child with cancer. info@curesearch.org 800-458-6223 |
| EmbodiWorks | EmbodiWorks is a non-profit educational website providing integrative cancer care resources for the whole person in body, mind, and spirit, including social and environmental health. |
| Patient Resource Cancer Guide | The Patient Resource Cancer Guide was created to empower and prepare newly diagnosed and newly restaged cancer patients to become their own advocates. To order a free copy, find information and resources please visit the web site. Debby Easum deasum@patientresource.net |
| The Farber Center for Radiation Oncology | The Farber Center represents a warm alternative to the sterile and often daunting hospital environment without compromising quality of medical care and we accept most insurance plans. Every patient gets their doctors cell phone number and email address so they have access to their doctors 24/7. Tanya Tohill-Farber tanya@thefarbercenter.com |
| The Max Foundation | An international nonprofit dedicated to improving the lives of people with blood and rare cancers worldwide. Their helpline provides free services of advocacy, emotional support and informational referrals. Erin Schwartz erin.schwartz@themaxfoundation.org |
| WhatNext | Developed with participation from the American Cancer Society, WhatNext.com is an online cancer support network that instantly connects people, based on a specific diagnosis, to highly relevant peers and resources. contactus@whatnext.com |
| Caregiving | |
| National Family Caregivers Association | National Family Caregivers Association (NFCA) is the nation’s leading family caregiver organization working to improve the quality of caregivers’ lives. Addressing the common needs and concerns of all family caregivers, regardless of their loved one’s age or diagnoses, NFCA provides education, support and advocacy to build the confidence and capability of family caregivers and remove the barriers that make family caregiving so much harder than it needs to be. NFCA will always be known as the organization that put a face on family caregiving and brought it to the attention of the public. info@thefamilycaregiver.org 301-942-6430 |
| ARCH National Respite Network and Resource Center | Publications, webinars, guidebooks, fact sheets and start up manuals can be accessed through the ARCH website. For family caregivers and other consumers, the ARCH website includes information on how to find, evaluate and pay for respite services through the respite locator service. |
| Family Caregiver Alliance | Family Caregiver Alliance is a voice for Caregivers. Our pioneering programs -- information, education, services, research and advocacy -- support and sustain the important work of families nation wide caring for loved ones with chronic, disabling health conditions (including Alzheimer's, Parkinson's, stroke, ALS and Traumatic Brain Injury.) Michelle Venegas mvenegas@caregiver.org |
| Well Spouse Association | We are a peer-to-peer support network for spousal caregivers. info@wellspouse.org 800-838-0879 |
| Leeza's Place | ‘A Place for Family Caregivers’; a community gathering place and resource center committed to providing free programs to educate, empower and energize family caregivers taking care of a loved one with a memory disorder or chronic illness. Katiani Presotto info@leezasplace.org 954-862-2218 |
| American Association of Caregiving Youth | A national resource for the support of children and teens who provide care for family members who are ill, injured, elderly or disabled. It is also a site for parents, professionals and the public to gain information to support these otherwise hidden providers of the health care system so that caregiving youth can complete their education, be healthy and become tomorrow’s productive adults. Dr. Connie Siskowski connie@aacy.org |
| Caregivers' Monday | Caregivers’ Monday, an initiative of the nonprofit Monday Campaigns, aims to remind caregivers that least on Mondays, they should take some time out for themselves. Cherry Dumaual cdumaual@mondaycampaigns.org 212-991-1056 |
| Caring.com | Caring.com helps individuals find local eldercare resources, make better decisions, save time and money, and feel less alone -- and less stressed -- while caring for aging parents, spouses and other loved ones. support@caringinc.zendesk.com |
| Elder Decisions®, a division of Agreement Resources, LLC | Elder Decisions® is a national leader in helping families resolve disputes around caregiving, living situations, trusts and estates. We provide: Mediation for families; Conflict Coaching for individuals and groups; and Training for mediators and eldercare professionals. Our partners recently published “Mom Always Liked You Best: A guide for resolving family feuds, inheritance battles & eldercare crises.” Crystal Thorpe crystal@ElderDecisions.com 617-621-7009 x24 |
| GiveForward | GiveForward provides personalized fundraising pages and coaching that empower friends and family to answer the question "What can I do to help?" when a loved one is in need. Cate Conroy Cate@GiveForward.com 312-322-1200 |
| Disabilities | |
| One Place for Special Needs | Get practical information to help your child at home, school and the community. Find thousands of disability resources, programs and services. info@oneplaceforspecialneeds.com |
| General Health | |
| National Health Council | The National Health Council is the only organization of its kind that brings together all segments of the health care community to provide a united voice for the more than 133 million people with chronic diseases and disabilities and their family caregivers. Made up of more than 100 national health-related organizations, its core membership includes 50 of the nation’s leading patient advocacy groups, which control its governance. info@nhcouncil.org 202-785-3910 |
| American Health Assistance Foundation | The American Health Assistance Foundation (AHAF) is an international nonprofit organization dedicated to funding research to find cures for Alzheimer's disease, macular degeneration, and glaucoma. info@ahaf.org |
| National Women’s Health Resource Center | The nation’s leading nonprofit health information source offers one stop for all women’s health and wellness information from heart disease and breast cancer to pregnancy, fertility, fitness and nutrition – and everything in between. info@healthywomen.org |
| Huntington's Disease | |
| Huntington’s Disease Society of America | HDSA is the largest non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s disease through research, care, education and advocacy. |
| Lung Disease | |
| American Lung Association | Now in its second century, the American Lung Association is the leading organization working to save lives by improving lung health and preventing lung disease. With your generous support, the American Lung Association is “Fighting for Air” through research, education and advocacy. info@lung.org 800-LUNG-USA |
| Military | |
| Wounded Warrior Project | The mission of Wounded Warrior Project is to honor and empower wounded warriors. Its purpose is to raise awareness and to enlist the public’s aid for the needs of injured service members, to help injured servicemen and women aid and assist each other, and to provide unique, direct programs and services to meet their needs. info@woundedwarriorproject.org 877-TEAM-WWP (832-6997) |
| Gary Sinise Foundation | The Gary Sinise Foundation serves our Nation by honoring our defenders, veterans, first responders, their families, and those in need. They do this by creating and supporting unique programs designed to entertain, educate, inspire, strengthen, and build communities. contact@garysinisefoundation.org |
| National Military Family Association | The National Military Family Association provides families of the seven Uniformed Services with information, work to get them the benefits they deserve, and offer programs that improve their lives. info@militaryfamily.org |
| Muscle & Neuromuscular Disease | |
| Muscular Dystrophy Association | MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy and education. mda@mdausa.org 800-572-1717 |
| Parenting | |
| Parenting With Cancer | ParentingWithCancer provides support and information for parents with cancer and the people who love them. Jen Singer jensinger@mommasaid.net |
| TwinsTalk | TwinsTalk is the award-winning gathering place for parents of twins and multiples with wisdom from the true “experts” in this field -- parents like you! Susan Heim susan@twinstalk.com |
| Parkinson's Disease | |
| American Parkinson Disease Association | APDA is the nation's largest grassroots Parkinson's organization. Volunteer chapters raise awareness and funds for research. I&R centers provide patient/caregiver services and physician referrals, educational materials and programs. Support groups address the needs of patients, families, the newly diagnosed, young onset, and caregivers. The APDA National Young Onset Center is the country's only full-time center addressing the specific challenges of young people with PD. apda@apdaparkinson.org 800-223-2732 |
| National Parkinson Foundation | An online resource for the more than four million people worldwide living with Parkinson’s disease, their families and healthcare professionals. Cathy Whitlock cwhitlock@parkinson.org 305-243-8162 |
| Patient Advocacy | |
| Patient AdvoCare | Professional patient advocacy to get you or a loved one safely through a healthcare crisis. |
| Patient Resources | |
| Patient Airlift Services (PALS) | Patient Airlift Services (PALS) is a 501c3 non profit that arranges FREE Air Transportation for individuals who are in need of diagnosis, treatment, transplantation or follow up. Although our primary area of coverage is in the Northeastern U.S. we can link with or refer to similar organizations that allow for National coverage. |
| Spinal Cord Injury | |
| Christopher & Dana Reeve Foundation | The Christopher & Dana Reeve Foundation is committed to funding research that develops treatments and cures for paralysis caused by spinal cord injury and other central nervous system disorders. The Foundation also vigorously works to improve the quality of life for people living with disabilities through its grants program, Paralysis Resource Center and advocacy efforts. infospecialist@ChristopherReeve.org |
| FacingDisability For Families Facing Spinal Cord Injuries | Facing Disability is a web resource with more than 1,000 videos drawn from interviews of people with spinal cord injuries, their families, caregivers and experts. Info@facingdisability.com |
| National Spinal Cord Injury Association | The National Spinal Cord Injury Association (NSCIA) was founded in 1948 to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D) with active-lifestyle information, peer support and advocacy that empower individuals to achieve their highest potential. Bill Fertig bfertig@spinalcord.org 800-962-9629 |
